I never thought that i would have to spend any long period of time in a hospital for any of my children. Yet here we were, with our 1 week old son. Waiting for him to go in for his heart surgery. I couldnt handle not being at the hospital and was there at 7am with my husband. Before this, this was the first time i had seen my husband cry. We talked all day, trying to keep our spirits up. Thankfully my family was able to watch the children while we were there. Around 4pm we were called back up to the PICU. So many thoughts were going threw my head...was he ok..was the surgery successfull?? I needed to know! And there he was, laying in the warmer with his little chest opened up. First thing i did was cry, and then the dr told us that he went threw the surgery with flying colors!! They let us know that his chest would be open 24-48 hours for that just in case they needed to go back in, in a rush. I couldnt stay that night with him, i couldnt bare seeing his chest open like that. At the same time it killed me to be at home, yet the nurses and dr's told me to go home and get rest. They could see i was pushing myself beyond what i should have been doing.
We were back the next day sitting with him...it was so strange seeing him like that. I learned then that he might be in the hospital for 30 days. I didnt know how we were going to keep this up. Driving back and forth, my daughter was in school, my son was sick with a cold so he couldnt be there with me. I felt like everything was falling apart, and fast.
November 3rd we got a phone call from the dr saying they were closing up his chest that everything was looking great...better than expected even. It felt so good to hear that...my little man was so strong!! We got to the hospital just hours after his chest was closed up, still heavily sedated but he looked calm and content. Its so amazing how resilient babies little bodies are.
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