Stressed out momma

Man I have been busy! Where do i start? Raiden's medicine Delima.... June 28th I called in and ordered rays blood pressure medicine. He had 5 days left on it so I thought I was safe next day airing it. Boy was I WRONG. July 1st I called checking on the status, the recording said that the rx had expired and they were waiting to hear from the dr. "ok, call the cardi" I thought, this is no biggie. Again I was WRONG. They did send his meds out, but to the pharmacy down the street, not the specialty pharmacy that it needed to be sent to. It is now the 3rd of July and finally I get word that his meds are being processed. I'm stressing by this point cuz he just finished his bottle of meds. The 4th comes and goes and is now the 5th, 7whole days later! I call the pharmacy again trying to see if the meds were shopped. "the prescription on file is expired. Please call your dr to have it updated." WTH!?! I did that on Tuesday! It was confirmed to be there. Again I call the dr and the pharmacy. Again I'm told it processing. IT'S NOW FRIDAY!! I still don't have his meds and iv gotten two phone calls about his other medicines that I have plenty of. I'm bawling my eyes out by this point, I'm on the phone crying to the cardi office, I'm crying and bitching out the pharmacy. Saturday morning at 8:30am his medicine is finally dropped off. At 9:04am I get a phone call from the pharmacy saying his rx was on hold due to an expired prescription....what the world they just dropped it off?! That was just one week. I missed the district convention due to no money for gas. Haven't left my house but to go to target to get ray his milk.....I'm going out of my mind. Lst wednesday ray and Wyatt had a appointment with their cardi. Unbenost to us, there were o2 sensors put in the apartment. (6 months ago I asked about the, putting them in and I was told it was my responsibility.mi went out and bought a good one from Costco. See where I'm going here??!) Tuesday I decided to re arrange the apartment, well more like starting the demo process, the house was a mess Wednesday. Had I known that management was going to come in I would have just cleaned up so they could come in and be gone,mthen start rearranging things. Well I didn't know and they came into my filthy house...yes I said filthy I tore my place up. Making piles of clothes for give away donation and laundry. Friday I see we have a notice on our door, it stated due to the excessive clutter In our apartment they couldn't do their inspection. Wait what inspection!??! There WAS NO NOTICE INFORMING US ABOUT A INSPECTION. Now these people think I'm filthy and can't take care of my kids. Yes, my house was messy when they got there. No they didn't tell me they were coming and I made it worse! FYI my house is imaculate now. Not because management is coming in today, but because that was my plan the whole time! You can't renovate a house with out the demo process, I had to pull old clothes, toys, and furniture out to throw away. I re organized every bedroom, closet and dresser drawer. I did ALL THIS ALONE WITH 4 KIDS IN THE HOUSE 2 ARE UNDER THE AGE OF TWO WHOM DEMAND MY ATTENTION. I'm tiered of people thinking I'm lazy, I'm tiered of people thinking my life is easy. I put on a happy face, but I'm stressful mess on the inside. If it wasn't for mark and the handful of friends that I have I may have lost it a long long time ago. As of today I'm good tho. My house is clean, grocery shopping tonight with my honey and kids. A camping trip is planned for next week and by George I can't wait to go! I may complain about how tiered I am or how stressed out I am, but I WOULD NEVER TRADE IT. I LOVE being a heart mom, I LOVE being a MOM!

Summer Blues

Summer should be fun and exciting. This summer started off that way and now is just plain boring. Keeping raiden and Wyatt out of the heat is nice (health wise) but its boring. Being poor this time a year stinks can't travel with the kids, go to amusement parks, barely can drive down the hill to a friends house. I'm trying to make the most of it. The big kids are visiting my folks in Washington. Most people think that's giving me a break. They are sadly mistaken. It's quiet in my house and all I have time to do is feed the boys play with the boys get them to take their nap and start all over again. At least with the kids home they could play with the babies while I cleaned the kitchen. I CAN'T WAIT for them to get back!!

How Time flies!

I can't believe it's been 7 months since Wyatt came into this world, and raiden is 19 months old!! The kids are now out of school and I can work on raiden and Wyatt's nap schedule! Looking forward to this summer with the kids. Wish I could get ray and Wyatt in swim lessons, but with marks schedule that's gonna be hard. Glad ray has been doing so well. Next month is his cardiologist appointment. Praying that he gets to be taken off one of his meds. I'm so thankfully that he is as healthy as can be for his condition, I love how much energy he has. That energy also scares me tho. He loves running around with his brothers and sister. Can't wait to see what our future holds for our family :)

Toy Box Delima

Gotta love kids. Kai and I had a date night, we went to go see the Avengers. We were both soooo excited about seeing the movie. We got popcorn, gummie bears, and shared a fruit punch. Twenty minutes into the movie, my sweet boy grabbed my hand and said he was ready to go. GO?!?! We just got here! They movie just started! Sigh we got up and left. I should have known better, tho Kai loves those movies he cant stand loud noises, let alone a loud movie. Guess I got a sneak peak of the first 20 minutes and I will just have to wait for it to come out on DVD lol Raiden raiden raiden.....the toy box is for putting our toys in. Not climbing on top of and then falling backwards onto your head. Really scariest at home moment that iv ever had with him. Thank goodness he is ok and only got a slight headache. This boy never stops! Mark took him to the park with his brother and sister and I thought for sure they would be gone 1 hour but they were back home within twenty minutes lol I won't even get started about my van or "mothers day". Just can't seem to catch a break. Hope things calm down I'm tierd of being stressed out, and given a guilt trip for trying to do something fun for my family. Just because we don't have much doesNt mean we can't have fun with our kids....

Spring Break

What is wrong with me?!? It's been way to long since my last post. A week after raidens cardi appointment he had an allergic reaction to something...what I'm not sure (at that time anyways). I rushed him to the pediatrician and she didnt know either. She gave him an allergies medicine and of course they sent it to a pharmacy 30minutes away from our house when we told them to send it to the one 5minutes from our house. By the time that was found out it was to late to pic up his meds. Thank goodness by that time the swelling in his lip had gone away. 3 days later it happened agan!! This time his whole bottom lip was swollen. I gave him the allergies medicine and by the hours end it was gone.
Then it hit me. He ate gold fish crackers all 3times that the reactions had happened. Raiden is allergic to gold fish crackers. I googled it And he isn't the only one. There is MSG in them and also powdered milk. My poor son, but I'm glad I figured it out. This was 3 weeks ago..since then there has been no outbreaks and I threw out all the goldfish. Hopefully my buying organic snacks for him and the kids will work out better. Trying to eat and cook healthy snacks for myself and the kids.
Wyatt my fatty is 14lbs!! He is so big! He's 5months has said dada already and is almost sitting up by himself. These kids are just getting so big!

Thank you lord!!

At raidens last cardi appointment he was taken off his lasix. He weighed 23pounds! He is now wearing 18month cloths comfortably, and sleeping all night! He has been walking since he was 13months old and talking!
All of this is so amazing to me since his assessment with the "brain" specialist said he was going to be so behind!! I think I'm going to try and see if he might wanna try potty training! If he takes to it he will be the youngest of my kiddos to be potty trained. Whoever said that heart kids are delayed or slow is an idiot! Raiden has surpassed his older brother in many stepping stones and Kai is heart healthy!
My family is sooooo awesome!

Time Will Tell

So we had a scare with our insurance. For 9 days raiden was without his meds because of new guidelines the insurance company wants us, the dr, and pharmacy to follow. He went 9 days because the insurance company didn't like the way the cardi filled out the forms. He waited 9 days because his dosage wasn't correct when they called to verify for shipping. I was. Furious for 9 days and the insurance company never called me back to explain a darn thing to me. BUT for 9 days the pharmacy was apologetic and sympathetic. They tried to reassure me that he would be ok, that they were doing everything they could to get his meds. I appreciate them for that but for 9 stinking days I was crying at night because I could tell he was breathing differently, for 9 days I was letting him play to his hearts content worrying if I should lock him down so he doesn't work himself to hard. By day 8 I was calling all the numbers I knew for his cardi to find out why it's taking so long, by day 8 raiden had had 3 nose bleeds and i didn't know if that was cuz of not having the meds or something else.
Once he did get his meds (thanks to his awesome surgical nurse whom I will NEVER stop singing her praises) they kicked his little butt. He was so drowsy, he couldn't play the way that he had been. My happy boy for the next two days was a tiered mess, and all mark and I could do is just make him as comfortable as possible.
I'm so glad that his body got used to the meds again. He is back to his playfully self and loves us again lol I also found out not till he is 2 or 3 will he have his next surgery, so it looks like we are stuck in Sacramento for a while longer. Next year looks like we will buy a house because renting is killing us lol